Carney Complex Profile frame
2026-04-20
Carney Complex Awareness Day 2026 raises awareness of Carney Complex (CNC), a rare disease. The profile frame helps reduce isolation and increase visibility worldwide.Continue Reading
Finding the PRKAR1A gene
2021-04-22
Finding the PRKAR1A gene The first to be discovered gene associated with Carney Complex (CNC) was the PRKAR1A Gene. It’s considered one of the main genes for CNC. Of the 750 CNC cases documented worldwide 70% carry a mutation on this gene. The other 30% have a different underlying geneticContinue Reading
How the Carney Complex Community began
2021-04-20
During Jennifer‘s first visit to the NIH in 2004 she had asked Dr. C. Stratakis if there was a patient group for Carney Complex, he answered: ‘Not yet. But maybe you could start one?’ At the time she was 19 and didn‘t really see any sense to it or wayContinue Reading
The discovery of Carney Complex
2021-04-15
A physician par excellence, a true clinical investigator to whom endocrine pathology owes a host of diseases and myriad observations; and all of that, as Dr Carney always (and proudly) says, without a cent of any grant funding (!). To paraphrase the words of a song I liked as aContinue Reading
