Are you just learning about Carney Complex? Perhaps you’d like to educate yourself more? Why not start by reading these articles?
Feel free to share them with your doctors!
National Organization for Rare Diseases (NORD)
Information on Carney Complex provided by J. Aidan Carney MD, PhD, FRCP, Emeritus Professor of Pathology, Mayo Clinic
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Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
NICHD is part of the National Institutes of Health (NIH), Bethesda, MD, USA
Patient Education Materials
Genetic Home Reference
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Stratakis Lab Research
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Patient Education Handout
Click on the image to view Brochure (2015)
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additional information: If you are on your phone/ tablet, depending on the browser you are using, clicking on the image will start the download.
Research Articles
Carney Complex: an update
(2015)
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Carney Complex Review
(2019)
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Orpha.net has started to offer a description of Carney Complex in 8 different languages.
Click on the image below to their page.