Welcome!

Hi I’m Jennifer, and I created this site after my own journey with Carney Complex. Whether you’re newly diagnosed, supporting a loved one, or a medical professional looking to learn more — you are not alone.

This site is here to inform, connect, and empower everyone affected by this rare condition. We’re glad you’re here.

What is Carney Complex?

Carney Complex (CNC) is a very rare genetic condition that can cause both non-cancerous and sometimes cancerous tumors to grow in different parts of the body. It can also lead to problems with hormone levels.

Because fewer than 1,000 cases have been found around the world, Carney Complex is considered an ultra-rare disease. Finding it early and getting the right care throughout life can make a big difference.

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