Currently there are only 750 documented cases of Carney Complex worldwide. We want to be proactive in networking between research facilities and clinicians who deal with patients on a daily basis.


First and foremost this is a website by patients for patients. Secondly we aim to educate and aid health professionals in accessing information needed to get an early diagnosis, proper treatment and monitoring

We see it as our mission to:

  • Educate
  • Provide the most current research and clinical information on the web
  • Building Awareness
  • Support